A THREE year-old Cupar girl who suffers from two rare neurological conditions has inspired a charity CD by some of Fife’s most talented singers.
Contestants who took part in last year’s Voice of Fife competition, organised by the Fife Free Press Group, have joined forces to raise funds for little Erin Jarrett, who suffers from microcephaly and West syndrome, a rare form of epilepsy.
They want to buy her a special car seat that will give her the support she needs in order to enjoy the view from the window, as well as donate money to Kilmaron School in Cupar, which Erin attends.
The idea for the CD, called ‘Erin’s Friends — the Young and Old’, came from contestant George Aitken, who is well-known throughout north east Fife as an entertainer.
He heard about Erin’s plight from her grandmother and was so touched that he tracked down the other Voice of Fife contestants who had performed at the live show at Kitty’s, Kirkcaldy.
The CD, which was released on Friday, features 19 tracks of various genres.
Microcephaly, which literally means ‘small head’, is a condition in which the circumference of the head is smaller than normal because the brain hasn’t developed properly or has stopped growing. Like West syndrome, it affects around two per cent of the population.
Erin — who stays in Dalgairn Crescent with her mum Michelle, dad Shaun (33), who’s a postie, and big sister Shannon (4) — was diagnosed at the age of three-and-a-half months and now requires round-the-clock nursing care.
“The condition affects her development and she has to be fed via a tube in her stomach,” explains Michelle (27).
“She’s unable to sit up unaided, so a special car seat would make a big difference to Erin’s life as it would enable her to look around her.”
The car seat, which is being designed in conjunction with Fife Police, will cost more than £1000 and George also hopes to sell enough copies of ‘Erin’s Friends’ to give a similar amount to 20 youngsters at Kilmaron with special needs as well as make donations to Age Concern and various care homes.
George said: “The CD has something to please most tastes, whether you are young or old, rich or poor.
“It will allow a wide audience to enjoy the music and in turn increase the contributions to our fund-raising efforts.”
‘Erin’s Friends - The Young & The Old’ is priced £4, this includes a £2 donation (although people can give more if they want to).
For more information or to buy a copy of the CD please contact George Aitken on (01592) 744496; look up Erin’s Friends on Facebook or email him at: firstname.lastname@example.org