Huge challenge for Glenrothes man to help a brave little girl

Scott Newlands who is doing a 105 mile triathlon with friends to raise money for neice Amelia who has a rare genetic condition

Scott Newlands who is doing a 105 mile triathlon with friends to raise money for neice Amelia who has a rare genetic condition

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A Glenrothes man is about to undertake a huge 105 mile challenge to raise money for his neice who has a rare genetic condition.

Scott Newlands (36), will take part in the Scotland Coast to Coast 2013 event on September 14 and 15 – running, cycling and kayaking between Nairn and Ballachulish with two friends of his, John Williams (37) and John Grant (41), owner of Spokes cycling shops in Kirkcaldy, St Andrews and Dundee.

The trio are taking part in the challenge to raise as much money as possible for Scott’s neice Amelia Newlands (2), of Kirkcaldy who has Phelan McDermid syndrome which affects her speech, movement and development and is similar to autism.

There are only 700 people worldwide who have been diagnosed with the rare condition, caused by a missing chromosome, and Amelia requires round the clock care as well as specialist equipment, which the money raised will go towards.

Scott, of Sorn Green, runs his own plastering, roughcasting and slating business and has been a keen cyclist for around four years.

Scott initially set himself a target of £500, but has already almost doubled that from pledges from generous friends and workmates.

Amelia’s family hope to use money raised to buy her a special travel cot which they can use when the family travels to the USA next year for a special conference on Phelan McDermid syndrome.

Scott said: “Until last week the most I had cycled was around 30 miles, so this is going to be a huge challenge for us all, but we all wanted to do what we could to help Amelia. We have been training hard over the past few weeks, so hopefully it will all pay off.”

Coast to Coast Challenge: Trek or run 7 miles (5 miles off-road); road cycle 47 miles; mini kayak and run two miles; off-road and road cycle 33 miles (16 miles off-road); trek/run 14 miles (12 miles off-road); kayak one mile then short run to finish - total journey 105 miles.

Phelan McDermid Syndrome: Like other autism-related conditions, PMS is associated with intellectual disabilities, sleep disorders and seizures. Most children do not develop functional language. Infants with medium to large chromosomal deletions may have very low muscle tone, poor motor control, and problems with eating and sleeping.