A fun fundraiser with a serious aim

Craig, pictured with his  brother Adam, needs life saving treatment that NHS Scotland is refusing to consent to. Pic: FPA
Craig, pictured with his brother Adam, needs life saving treatment that NHS Scotland is refusing to consent to. Pic: FPA

A Kirkcaldy family are raising money in order for their teenage son to receive life saving therapy.

Craig Victory (19) developed a flu virus aged 11 from which he never fully recovered.

The therapy is the difference between life and death for Craig

Yvonne Smith

He went from a very active, happy, healthy child to a teenager who is bed bound 24 hours a day.

He only leaves the house to attend doctors appointments in which has to use a wheelchair.

Craig is in constant debilitating pain, which requires morphine, and has developed multiple medical problems over the last eight years.

These include hyperacusis - extreme aversion to sound - photosensitivity and chemical sensitivity, osteoporosis and scoliosis and autoimmune disorder.

Now his family and friends are aiming to raise enough money as they can so that Craig can receive the treatment he desperately needs.

Craig’s mother, Yvonne Smith, said: “Craig needs immunoglobulin therapy as soon as possible.

“This therapy holds a high risk; there are no guarantees of success and he may not survive.

“However, this is his only hope.

“Craig knows the full risks involved with the treatment but simply says ‘I can’t continue to live like this’.

“He is in constant pain and is really sensitive to light and sound,” Yvonne continued.

“He has his iPad to keep him occupied and he used to play his Xbox, which worked as a great distraction for him, but now he’s just too tired.”

The family need to raise £20,000 for Craig to receive the treatment privately.

“A consultant in Essex had offered to carry out the treatment, but we needed NHS Scotland to consent to this,” Yvonne said.

“Sadly, this didn’t happen so we are forced to raise the money ourselves for a consultant neurologist to treat Craig privately.

“We have raised well over £4000 so far from kind donations.

“Our family have got together and organised a fun day this month and we have another one coming up at some point in the summer as well to try and raise as much money as we can.

“All we’re asking is for Craig to have this chance at therapy which would help him so much.

“The therapy is the difference between Craig surviving or dying,” Yvonne added.

A fun day to raise funds for Craig’s treatment is being held at Dunnikier Hotel on Sunday, April 26 from 12.00 p.m. until 4.00 p.m.

There will be a bouncy castle, a wide variety of stalls including cake, candy and crafts, tombola and balloons. Entry is free.

To support Craig visit www.gofundme.com/mdhzl0 or on Twitter @Craigslastchance15.