Charity’s help lets little Amelia travel in safety

Amelia Newlands
Amelia Newlands

A Kirkcaldy youngster can now travel safely - thanks to a leading children’s disability charity.

Amelia Newlands (3) has Phelan McDermid Syndrome, a rare condition which affects learning and memory, and urgently needed a specialist car seat to keep her secure during journeys to hospital and clinic appointments.

But statutory funding is not available to pay for the equipment, which costs £2221, and this prompted Amelia’s family to turn to the Newlife Foundation for help.

Amelia’s mum Jenni said: “With her current car seat, Amelia slides out of the bottom of the harness. Not only is she in danger of being strangled but she thrashes her legs around, kicking the driver in the head.

“For someone who doesn’t walk, she has a lot of movement.”

Jenni added: “The new car seat would also support Amelia’s postural needs because she would no longer be sliding all over the place.”

Newlife has awarded 46 equipment grants for children in Fife, totalling £120,000 and – recognising the urgency of the situation – is responding to Amelia’s seating needs.

However, demand on the charity’s range of practical support services is growing – as statutory budgets are cut – so Newlife is increasingly calling on locals to help fund equipment for children.

Sheila Brown, Newlife CEO, said: “We guarantee that 100 per cent of all monies donated or fundraised in Fife can be ring-fenced to specifically provide equipment for disabled and terminally ill children within the county.”

Anyone wanting to donate to the charity, which is currently helping three families, should contact 0800 988 4640.