Craig Young passed away peacefully at his home on Saturday, just days after being featured in the East Fife Mail as the local face of Children’s Hospice Awareness Week.
The 17-year-old, who had a rare genetic condition, was taken immediately by ambulance to Rachel House Children’s Hospice in Kinross, where he had spent so many happy times in respite care.
We have shed many tears but there has been laughter too as we recalled stories of CraigJulie, Craig’s mum
Rachel House opened its doors not only to his mum and dad, Julie and Neil, but extended family and friends who were able to spend time with Craig in the Rainbow Room.
‘’The wonderful thing is that it’s home from home,’’ said Julie. ‘’ I have been staying here since Craig passed away. We have shed many tears but there has been laughter too as we recalled stories of Craig.
‘’We have been able to say our goodbyes at our own pace without the pressures so often placed on bereaved families. The staff are superb from providing emotional and practical support to serving tea and home-baking.
“Despite Craig’s daily struggles, he had a wonderful zest for life. His infectious smile lit up any room, he had a mischievous twinkle in his eye and a great sense of humour. He was an inspiration to all who knew him because life was about what he could do, not what he couldn’t do. “
A popular pupil of Hyndhead School, Buckhaven, he enjoyed travelling and had swum with dolphins and visited Disney in Florida and Paris.
A personal triumph was carrying the baton along Leven Prom for last year’s Commonwealth Games.
Neil urged people to take the opportunity tomorrow (Thursday) to respond to Children’s Hospice Awareness Week. The theme is Make Every Moment Count.
‘’Give generously to help improve the lives of children like Craig,’’ he added.
Text CHWK99 then an amount of £1 pound, £3 pounds or £5 pounds to 70070. For example to donate £1 text CHWK991.